Consulting with organizations and individuals will be essential to the success of this project. This will include:

  • individuals with FASD
  • families and caregivers of individuals with FASD
  • organizations with an interest in FASD

We will engage in five different ways:

  1. virtual sessions (open to all)
  2. written input (focusing on organizations)
  3. small group interviews (with government representatives)
  4. online focused discussions (with a diversity of individuals with FASD and their families and caregivers, as well as clinicians and other professionals working in this area)
  5. targeted engagement led by and for Indigenous persons

There will be two rounds of engagement: gathering information and validating key findings.

Gathering information: January 2024

Round One will focus on barriers and challenges to progress and suggestions for improvements:

  • Identifying who among health and other allied professionals may or may not be using the FASD Diagnostic Guidelines, what the perceived barriers and challenges are to their use, and what is needed to support broader uptake of the Canadian FASD Diagnostic Guidelines in Canada.
  • Assessing barriers and challenges in implementing the measures outlined in the FASD Framework (2003), especially systemic. This includes consideration of what are the clinical/community and, F/P/T challenges associated with case identification and data collection in Canada.
  • Generating suggestions on how FASD prevention activities can be strengthened to support the overall objective of reducing the prevalence of FASD in Canada and what tools, resources and supports are needed to improve outcomes for those with FASD across the life course.

Validating key findings and exploring implementation (Spring 2024)

Participants in round two of the engagement process will have the opportunity to provide feedback on initial findings from the evidence and first round of engagement. We will generate ideas on how to implement some of the most promising ideas and identify which of these may be most effective and feasible within the Canadian context.

We want to hear from you

Virtual sessions

There will be two (2) rounds of six (6) virtual engagement sessions. Through this process, we will identify evidence-informed and practical key findings with possible pathways forward for policy makers.

The first series of consultations was held from January 19 to January 24, 2024. The next series will be announced soon.

To find out more, please check our FAQ or email fasd-tsaf@cahs-acss.ca.


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